By Donna Gundle-Krieg January 20, 2009
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Mackenzie Mack Marion, a straight-A student at Oxford High School, died of a stroke and respiratory failure. He was born with Duchenne muscular dystrophy, a fatal disorder.
Ironically, there was an uplifting story in last week's Oakland Press about the excitement of Mackenzie “Mac” Mario going with his father to Washington D.C.
Jerry Wolffe, who writes a column for the Oakland Press about people with disabilities, always does such a special and sensitive job on these stories.
Mac was going to Washington as a member of the National Young Leaders Conference.
“He’s got a front-row seat now,” said his dad, Tom Marion. “We bought tuxedos and everything, and he’s going to get to wear it for one last time.”
Mackenzie “Mac” Marion isn’t going to be among the throng today when Barack Obama is sworn in as the nation’s 44th president. The 14-year-old Oxford youth died on Saturday — the day he was to fly with his father, Tom, 52, to Washington, D.C., to see Obama take the oath of office.
“It’s unbelievable,” Mac’s father said of his son’s death on the day he expected to leave for the inauguration. “He’s got a front-row seat now,” his dad continued. “We bought tuxedos and everything, and he’s going to get to wear it for one last time.”
In an article in The Oakland Press on Friday (see below) Mac, who was
born with Duchenne muscular dystrophy, a fatal disorder, talked about the
historic event with great energy and enthusiasm.
“I think being at the inauguration will be really huge, because Obama is the
first black man to become president of the United States,” Mac said.
Friends and family were at a loss and in shock after Mac died Saturday.
Preliminary indications were Mac had a stroke and respiratory failure, his
dad said.
“He had such a strong life force,” Tom Marion said. “Mac wasn’t disabled,
not in his mind."
His sister Abby said, “Mac was afraid of dying, but Mac told me, ‘You
know, Abby, I’ll be able to walk in heaven.’ ”
Mac had great faith in God and knew the Bible from front to back, his father
said. He added his son never worried about life or using a power wheelchair
to get around. He just gave his worries to God.
Mac told a reporter he planned to be an accountant and was proud he was
nominated by his algebra teacher at Oxford High School to be a member of the
National Young Leaders Conference. Only students with leadership potential
are picked to join.
Mac’s mother, Gale, went in to check on her son Saturday and noted he didn’t
seem normal. “Abby came in the bedroom and said we have to call 911,” Mac’s
father said. An ambulance rushed Mac to Beaumont Hospital in Troy. He was
then transferred to Royal Oak Beaumont and placed in the intensive care
unit.
“He kept going downhill,” Tom Marion said. “Nobody could figure out what was
going on. His heart was going crazy … beating up to 200 times a minute and
then hardly beating at all.
"I never seen anyone with so much (medical) stuff on him,” his father
said Monday. “Doctors kept telling us, ‘This is not good, not good, but we
don’t know what’s causing it.’ ”
Marion said his son’s heart stopped and doctors tried for 30 minutes to
resuscitate him, but Mac was gone.
“All my seven brothers, my parents — Jan and Jean Marion — my wife and Abby
were there when he died,” Marion said.
“We can learn from Mac’s life. He didn’t worry. He lived it. He was a
trouper. He was so wise for (being) such a young age.”
Marion said his wife “treated Mac like any other child.” His sister Abby and
he were best of friends, the father added. Abby, 13, a year younger than her
brother, helped Mac in every way she could, he said. “She picked him up when
he fell and they were the best of friends.For a kid with what he had going,
he was an angel," Marion said of his son.
Visitation for Mac is scheduled from 4 to 9 p.m. today and 2 to 5 p.m. and 7
to 9 p.m. Wednesday at the Potere-Modetz Funeral Home, 339 Walnut Blvd., in
Rochester. A funeral service is scheduled for 11 a.m. Thursday at the
funeral home, with burial to follow at Guardian Angel Cemetery in Rochester.
A 14-year-old straight-A student at Oxford High School is going to attend
the inauguration of President-elect Barack Obama in Washington, D.C., on
Tuesday.
Mackenzie “Mac” Marion is a member of the National Young Leaders Conference.
He and others in the organization are going to the inauguration, his father,
Tom, said Thursday.
The organization offers students the opportunity to discuss current events
and issues with top policymakers in Washington, D.C., analyze concepts and
put them immediately to work.
“I think it will be really cool to see Obama sworn into office as
president,” said Mac, making his Rochester Hills-based grandmother very
proud.
His father, who works at the Mike Savoie Chevrolet dealership in Troy,
will go with him to D.C.
Mac, who has Duchenne muscular dystrophy and will use a power wheelchair
during his trip, wants to see “the inside of the congressional buildings,
monuments and the Vietnam War Memorial,” he said.
He and his dad also are invited to attend a ball after Obama takes the oath
of office as the 44th president of the United States, Mac said.
“We bought tuxedoes to attend the ball after the inauguration,” he said.
“(Former Secretary of State) Colin Powell and (former) Vice President Al
Gore are expected to be at the same event. “We’re going to leave on Saturday
from Metro Airport and arrive late at night in Washington,” Mackenzie said.
They plan to return home Tuesday.
Mac and his father have rented a room at a Best Western motel in McLean,
Va., a Washington, D.C., suburb.
Mac, who says he wants to be an accountant, got interested in politics when
he attended a national youth leadership conference last March in Ypsilanti.
His algebra teacher recommended him for membership in the group, he said.
“I think being at the inauguration is going to be really huge because Obama
is the first black man to become president of the United States,” he said.
He said he thinks his interest in politics will increase after he’s part of
the historic event.
Besides enjoying mathematics, Mackenzie says, “I like to do a lot of
things.”
He has a special interest in military aircraft, and likes playing video
games on the Internet. His father also is enthused about the trip.
“I think it’s great. I hope President Obama does what he says he’s going to
do” to fix the economy, Marion said.
“I didn’t vote for him, but I hope he can get the U.S. economy going,” he
added. “He needs to put money in people’s pockets. Why not make any tax
break retroactive to January 2008?”
As for the Michigan economy, Marion said, “If we think it’s bad around here
now, if Chrysler shuts down it’ll get a lot worse.”
He says Mac has a great attitude and is “amazing.”
“Most kids that have the disability he has are in a wheelchair at 10, but
not Mac.”
He said his son fell about a year ago and injured his knee, so he started
using a manual wheelchair during the past year.
Mac said he’s taking the power chair to Washington because it’s more
convenient and it can go 7.5 mph.
Duchenne muscular dystrophy is a fatal, degenerative disease which wastes
away the muscles in the body.
Some medical progress has been made and many patients live into their 30s
now, compared to their teens a few decades ago.
Marion, who has seven brothers, had a wheelchair accessible home built for
his son, who has a sister, Abby, 13.
“We have a built-in pool filled with salt water” that requires a lot less
maintenance than a freshwater pool, he said. Mac enjoys the pool and is able
to walk a bit in the pool because of the buoyancy of the water.
Mac’s grandmother, Jan Marion of Rochester Hills, said $4,000 was raised so
her grandson and son can go to the inaugural. The dealership alone donated
$2,000, she said.
“It’s going to be quite an experience for Mac, and we’re honored he was
nominated to attend the inauguration.”